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Saturday, October 25, 2014

Retts Syndrome Disney Awareness Blog Hop

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Happy Saturday
and 
Welcome to this year's Blog Hop for...
Rett Syndrome Awareness
 
In this hop we will be showing you many Disney themed projects while sharing with you about
Rett Syndrome.
If you have just stopped by my blog to visit with me, thank you and welcome, but please start at the beginning of the hop with our
Hostess, Robin from
Create-A-Latte.
We would not want you to miss any of these wonderful projects.

So, grab yourself a Latte', sit back and hop along with us as we share our projects with you.
 October is Rett Syndrome Awareness Month, so I wanted to help get the word out and what better way to do that than with a blog hop.
  
Rett Syndrome strikes without warning. A girl with Rett Syndrome usually starts out as a happy and healthy baby. Then something goes terribly wrong. She loses the ability to speak, she can't use her hands to play with toys, or to even feed herself, and she may lose the ability to walk. 
Despite their physical disabilities, girls with Rett Syndrome are believed to be functioning mentally at a much higher level than previously thought.   
Rett Syndrome is caused by a mutation of the MECP2  gene on the X chromosome.  
Rett Syndrome is found in all racial and ethnic groups throughout the world, and in every socioeconomic class.  
Rett  Syndrome affects in 15,000 female births.  

*Symptoms of Rett Syndrome...

Rett Syndrome is a genetic neurological disorder that affects girls between 6 and 18 months of age. This regressive disease leads to lifelong handicaps, including loss of speech and voluntary muscle control, and is often misdiagnosed as Cerebral Palsy or Autism. Symptoms range from mild to severe, and almost always include...
*Developmental Regression or Plateau
*Near constant hand clasping or wringing
*Severe communication impairment
*Breathing problems
*Digestive issues
*Floppy arms and legs
*If able to walk, then with a shaky, unsteady gait, or toe-walking. But most do end up using a wheelchair for the most part.
*Scoliosis
*Seizures
*Slowing head growth
*Abnormal sleep patterns
*Transient loss of social engagement
*Poor circulation that can lead to cold and bluish arms and legs
*Anxiety
  
Many individuals with Rett Syndrome live well into adulthood, although there are some that do not get that chance and end up losing their battle to Rett Syndrome at a very early age.
Most people including Doctors are not aware of Rett Syndrome, so, please help me get the word out about Rett Syndrome and hopefully the more that know the faster we can help in finding a cure.

For more information you can visit...
http://www.rettsyndrome.org/

Now, are you ready for some blog candy???  We have a several wonderful and generous sponsors today...


1.  Lucy Kelleher
with Close to My Heart
$10 gift certificate for Close to My Heart products with Lucy 

Close To My Heart


2.  Dee's Delights Store
$20 Gift Certificate for Dee's Store



3. Heather Stafford with...
Gemini Red Creations
A floating locket and your choice of two floating charms 


 

http://www.geminiredcreations.com/shop/floating-lockets/
 

4.  Diana Larson with
DLART
$10 Gift Certificate for DLART Store

https://www.etsy.com/shop/DLART

5.  Robin Lane with
Create-A-Latte
A Collection of Snap Products by Simple Stories. Everything you need to put together your Disney memories.
The kit comes with an Album, a pack of Insta Pocket Pages, "Say Cheese" Journal Kit, and the "Say Cheese" Snap Pack.

  

Without further ado...Our Disney Projects.

Be sure to head on over to....

CONNIE



for your next stop and see her wonderful project that she has made to share with you today.

If you get lost along the way here is the entire line up for today's Blog Hop.
1. Robin L. ~  http://create-a-latte.blogspot.com/


Thank you for hopping along with us today, I hope that you have learned something about Rett Syndrome and that you will help spread the word so that we can make as many people aware of this as possible. I also hope that we have inspired you to get your craft on.

Stamp of the Month-Home for the Holidays! 





*Take this stamp home for only $5 when you spend $50 or more! 


Click below on the shopping cart to be directed to my online store to grab your goodies!!! And be SURE to click on the October Mystery Hostess Gathering! 


October Constant Campaign- RIBBON REVELRY





During the month of October, with each qualifying purchase of $50 USD / $55 CAD you are eligible to receive—as a special bonus—one of two chevron ribbons FREE! Each chevron ribbon—Ruby or Outdoor Denim—has an original retail value of $6.95 USD / $7.75 CAD. So which ribbon will you get? It’s a surprise! Quantities are limited, so place your orders as early in the month as possible. Be sure to take advantage of this fantastic offer so you can enjoy embellishing your creations with your own surprise roll of bonus ribbon!
Dates: Offer valid October 1, 2014–October 31, 2014.



Hope to catch you all Craftin' and Stampin'! 

16 comments:

Eva Laney said...

Hmmmmm, I don't see a project here, I will check back later.

Golden Goddess Designs said...

where's your project jessica? I will come back!

Scrappin Robin said...

Jessica thank you for being part of my special hop.
Robin
http://create-a-latte.blogspot.com/

Unknown said...

I didn't see the project either and thought it might just be me, haha - BL

Annemarie's Art From the Heart said...

I liked the stamp of the month. So fun!

DIANA L. said...

Love that stamp of the month-- Fun hoppin with you
Thank you for joining my DL.ART Thankful Thursday Anything Goes October Linky Party. Have a blessed day
DIANA L.
http://dianamlarson.blogspot.com http://dianamlarson.ctmh.com

Sarah Biswabic said...

I didn't see a project, but I amsure it would be wonderful!

Haidee said...

Hmm, didn't seem notice a project for your hop happy to come over and see what your awareness was TFS from BL groupE

BlueCrayons said...

would of loved to see your project,

Liz Mullen said...

ops! your project did post. i'll check back. (BL)

Connie Can Crop said...

Jessica!! We want to see your fabulous project! You always wow us.

Beeceecreativity said...

fabulous blog.. glad to visit and TFS... from BL

Nicole said...

Thanks for sharing the information about Rett Syndrome!

Unknown said...

Thanks for sharing this information.
Krafty Chick BL

Vanessa Bourque said...

I like the way that you shared everyone in the blog hops links. TFS (BL)

Mozzie said...

Thank you for sharing the word about Rett Syndrome . Hugs Maureenxxxx

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